![Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life](https://img.huffingtonpost.com/asset/5d0198962500004e12e04f7c.jpeg?ops=scalefit_630_400_noupscale)
Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life
Butterfly child' gets help from specialist with experience in treating her rare skin condition | MUSC Health | Charleston SC
![Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life](https://img.huffingtonpost.com/asset/5d0198902400008c1789d665.jpeg?ops=1778_1000)
Inspirational 'Butterfly Boy' Raises £65K For Rare Condition Which Makes 90% Of Skin Blister And Peel At Slightest Touch | HuffPost UK Life
Debra Ireland - The Butterfly Skin Charity - It is with a heavy heart that we have to tell you the very sad news that EB hero and campaigner Jonathan Pitre sadly
![19-year-old Chinese boy Mei Xiao, dubbed the 'butterfly boy', who suffers from a genetic skin illness, is pictured at home in Chizhou city, east China Stock Photo - Alamy 19-year-old Chinese boy Mei Xiao, dubbed the 'butterfly boy', who suffers from a genetic skin illness, is pictured at home in Chizhou city, east China Stock Photo - Alamy](https://c8.alamy.com/comp/W82NY9/19-year-old-chinese-boy-mei-xiao-dubbed-the-butterfly-boy-who-suffers-from-a-genetic-skin-illness-is-pictured-at-home-in-chizhou-city-east-china-W82NY9.jpg)
19-year-old Chinese boy Mei Xiao, dubbed the 'butterfly boy', who suffers from a genetic skin illness, is pictured at home in Chizhou city, east China Stock Photo - Alamy
![Butterfly boy' teenager who is 95% covered in blisters has delicate skin which falls off at slightest touch - World News - Mirror Online Butterfly boy' teenager who is 95% covered in blisters has delicate skin which falls off at slightest touch - World News - Mirror Online](https://i2-prod.mirror.co.uk/incoming/article11694741.ece/ALTERNATES/s615b/Butterfly-Boy-Teens-delicate-skin-falls-off.jpg)